Patient Story

https://www.youtube.com/watch?v=Hgv_0gGu6zsLast week when we were at the Minnesota Business Magazine’s Leaders in Health Care Awards, I was privileged to be chosen to share my story as part of the program. A couple of months ago, Jake, from the magazine came out to interview me so he could produce a video. I thought my video would be one of many supporting each of the nominees. It turns out my story was prominently featured with approximately 8 minutes of the program. There were only a handful of other, much shorter videos. What a nice honor considering the audience of some of the biggest names and fastest rising stars in the health care field were in attendance.

Jake sent me a copy to share with you. Hope you enjoy it. Please note: There is a video included in this post. For some reason when I have been adding video’s lately, it has not been included. To watch it, you may need to go the actual website versus reading the email. Here is the link Nikkisnewlungs.com

Last night, I spoke at Bethel University along with a family support coordinator from LifeSource. We spoke to mainly nursing students but also others taking social work, education, and business classes. I told Travis afterwards, I was really disappointed in my speaking skills this evening, I felt like I was babbling. I tested my blood sugar when I got into the car. It was over 400. In the past, I have told you a normal blood sugar range is between 80 & 120. When it gets either very high or very low it will sometimes interfere with my thought process. It is annoying but a hazard of having diabetes. Not sure what caused the spike but my sugars are now back to normal.

Cough update, my cough sure has subsided. The medication trio I have been prescribed must be doing its job. I don’t have lung functions again until the 17th. As always, that will be the true test to know if the medication has benefited me.

There’s one problem, I am having night terrors! They are awful. So realistic. I wake up with my heart pounding and I have to realize I’m in my bed and think, it’s not real! Thankfully they don’t happen every night. I spoke with my transplant coordinator this afternoon, she called the pharmacy to ask about my issues. Low and behold, night terrors can be a side effect of Singular, one of the trio of medications I am currently taking. These side effects only occur in LESS then one percent of the population. Go figure. If there is ever a small chance of something, I am usually part of that small chance.

Sweet dreams.

 

 

 

 

 

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6 Responses to Patient Story

  1. Jamie's avatar Jamie says:

    Nice job! wonderful video and you stated it all beautifully! So glad you are here sharing your story and living your life!

    Like

  2. Paul and Suzy Cossette's avatar Paul and Suzy Cossette says:

    What a beautiful video from a beautiful person. We Love You Nikki. Suzy

    Like

  3. Roberta Mellen's avatar Roberta Mellen says:

    Hey Nicki, so sorry to hear about the night terrors, how horrifying. I hope they figure out the right combo of meds. You are a rock star – you may not feel that way all the time but you are! Roberta

    Like

  4. Karen lamb's avatar Karen lamb says:

    You are such an amazing and inspiring person Nicole. To watch this journey since you were first diagnosed to now is truely an amazing life lesson for all of
    us. You carry yourself with such beauty and grace. I love you honey!

    Karen

    Like

  5. MEYER's avatar MEYER says:

    I loved this interview. Thanks for sharing!

    Laurie Meyer

    Like

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