It is very difficult for me to type due to the pain I receive on my incision across my chest. And I’m using one hand, so this will be brief. When I came home Saturday, I noticed my right arm was VERY swollen. Very much like the Popeye arm I had after my transplant. My right bicep is almost twice the size as my left arm. We thought maybe the I.V. I had in that arm had infiltrated. This means the fluid I received was no longer in the vein but was absorbed in the tissue.
My mom had to take me to the University today for some blood work. I don’t get a signal on my phone in the basement where the lab is located. We no sooner got in the car to come home, not a block away from the clinic, and I had a voice mail pop up on my phone. My doctor ordered an ultrasound to look at my arm. We turned around and headed back to the basement at the U.
After the test, I opened the bathroom door to find my transplant coordinator standing with my mom. I sat down in the wheelchair and she told me I have a couple new clots in my arm!!! We then proceeded to go upstairs to meet with my doctor. Once again, after hearing yet another bit of devastating news, I broke down in tears. Tomorrow, I am going to meet with the blood specialist again. We need to know what is causing these clots.
When are the tears going to dry up? When is the pain going to stop? When will the bad news end?
Nikki's New Lungs 
Oh honey, hang in there. We are praying for you. Hugs!
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Hugs!
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I am so sorry…
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Thanks Muffy.
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Saying a few prayers for you my dear. I’m so sorry that you are in so much pain.
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Thank you Lani!
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Nikki I feel bad to hear how discouraged you are. You have been through a lot. Keep being positive. That is what will get you through all of this . Think of all the fun things that you have
been able to do. This is a set back for you but you will over come all of these bumps in the road.
I am praying that you will have a better rest of the week. And your next post will be more incouraging.
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Thank you Peggy. Yes, I will overcome all of this.
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SOON, we all hope & pray. As difficult as it must be for you, try to be positive. Much better days are ahead!
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Thanks Habibi. Better days ARE ahead!
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Nikki-we are so sorry you have to be enduring all this pain…..we will keep you in our prayers. A big hug to you 💖.
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Thank you for the hug Coleen.
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Hi Nikki – I don’t know the answers to your questions, but I do know that you are amazing!
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Thank you so very much Spitter!
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We are all thinking of you and praying for you, Nikki. So sorry!
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Thanks a bunch Teresa!
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Nikki,
My heart hurts for you! I’m sure you are beyond frustrated and fed up with the pain. I pray that they get to the bottom of this VERY soon. I want you to be happy, healthy and pain free! Love always, Lisa
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Thank you Lisa. Hope you are well. Let’s chat soon.
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Nikki, I’m so very sorry to read all you have had to endure and continue to endure. Life seems very unfair. You have an incredible spirit and drive that will get you through, not to mention your adoring husband by your side. We’re all thinking of you and holding you close in our hearts! Sending you good thoughts. Hugs, Jill
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Thank you for the kind words Jill.
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Can help any day this week. Call or text at carlsonwayzata@aol.com or 612-269-9867
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You are so sweet Susan. Thank you very much.
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I am so sorry. Richard and I are praying for a solution and I will continue to send prayers and positive energy your way. Wish we could do more.
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Thank you. I am hoping and praying you receive a special phone call soon!
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Oh, Nikki. You have been so strong as I have been following your journey from afar. I cannot imagine how difficult this has been for you and all who surround you. It is definitely been a rollorcoaster ride. My hope is that what goes down must come up and you will find some solutions to help with the clotting. Are you seeing Dr. Redding? He is the clotting specialist my cousin has seen and who I worked with when I was at the Blood Clot Alliance. He is with the Fairview Center for Clotting and Bleeding disorders.
Please know I think of you and Trav often and am praying for you.
Chris
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You are right Chris, what goes down, must come up. I believe I am on the up swing! Yes, I did see Dr. Reding, he is amazing! Hugs to you and Tom!
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Nikkie – I am crying with you. You have been so strong – so determine – such a positive attitude but everyone has a point where they say enough is enough and that is where I am thinking you are. I am praying for healing for you and the ability to deal with what is thrown at you. Not like you have much of a choice. Things will get better! Hang in there dear Nikki and know how much you are loved!
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Nikki, I’m not used to hearing negatives things from you — you are one of the bravest and strongest people I know. You have been through so much already. You can do this. It will get better.
Thinking of you.
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Thank you Karen, it is slowly getting better.
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I did have a breaking point that was reached. Now, on to healing! Thanks Sandy 🙂
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Oh, Nikki! I’m so very sorry to hear of the new clots. 😦 Please know I am keeping you close in thought and sending good wishes your way. I am more than happy to help you in any way I can, just say the word! Your friend, Megan
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Thank you Megan!!!
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My heart is just sick for what you’re going through. Prayers to you and everyone on your team. xoxo Heidi
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Thank Heidi. Things are getting better.
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I have added you to the Prayer Vine at my church, Nikki. Please take heart and believe there will be a solution to all this misery! Know how much you are loved and how much you have helped others. Surely there has to be some good news in your future!!
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Thank you Marilyn. I am blessed to be loved by so many.
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We love you Nikki! You are in our thoughts and prayers.
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LOVE!!
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Nikkie I so feel for you and know what you are going through as I am having many problems also, but not like you. I was the one who gave you the purple bracelet. Hang in there, I know the tears, the pain, but we are both so strong, yet sometimes you wonder how much more can one person take or two here. I have been told that one person shouldn’t ever have to go through in my life what I have had to, but I think you running further a head of me and pray that your pain and all go away soon for you, lets just keep looking for the sun. I had my bilateral lung transplant in October and still don’t have the energy to get better with all the set backs 😦
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I’m sorry to hear you are having issues but I’m thrilled to hear about your transplant! We will get through these bumps in the road, hang in there. Thank you for the bracelet too. Send me am email so we can chat.
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Thanks you your encouragement!!
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Sorry, here is my email: leeannziegler@hotmail.com
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