Holiday Weekend

FallsI have been busy. It started last week with a bike ride with Dana & Aimee downtown. We biked along the Mississippi river, went to lunch, and stopped for ice cream. The river is very high right now, I got a great panoramic photo to capture the fury of the rapids.bike rideWe had a great holiday weekend that was jam packed. Our friends Paul and Jess stopped by on Friday with their new boat and took a bunch of us for a little cruise. We then came home and roasted hot dogs and marshmallows by the fire. Saturday we had a few more friends stop over for a visit then went to the neighbors for a BBQ. Sunday we went out for dinner and ran into some friends we have not seen in a long time. We ended up dancing the night away. Another advantage of my new lungs, being able to dance! I was jumping up and down and I remember thinking, wow, I am not out of breath. Hope everyone had as fun of a weekend as we did.Liz & ChuckLast night we took Lauren to the musical Shrek at the Children’s Theater for her birthday. Her birthday is really in January but since I was not allowed to be in large groups at that time due to my low white blood count, I checked out the schedule and we waited to see Shrek.ShrekSpeaking of birthday’s, yesterday was my mom’s birthday. Happy birthday Mom! We are going to celebrate this evening at dinner.birthday momAnd now, a health update…My lungs have been feeling fantastic. Although, my cough has come back slightly. They started me on a different antibiotic yesterday. Until I have my sinus surgery, it seems to be a never ending cycle of mucus draining into my lungs. Last Tuesday also marked the nine month anniversary of my surgery πŸ™‚9

Monday I met with the vascular surgeon. The procedure I need to endure is called a first rib resection and scalenectomy. They are going to remove a portion of my first rib and some of the scalene muscle then place a stent to keep the vein open.Β They can’t place a stent without removing these parts because of the location under my clavicle bone. Anytime I would raise my arm above my shoulders it would crush a stent. Yesterday they confirmed my surgery date for next Thursday, June 5th. I will be in the hospital a few days.

I am not looking forward to the procedure. The surgeon told me it is very painful. I think when you are told you will be using I.V pain medicine instead of oral medicine you can count for an unpleasant time. I also understand it is about a six week recovery. Just in time for summer right? There is an upside to all of this though. I will no longer have a tingly arm, a cold hand, or a white pinky and ring finger because of poor circulation. Also, I will need to take blood thinners for another couple of months but, it will mean coming off blood thinners forever! That is the biggest advantage.

 

 

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10 Responses to Holiday Weekend

  1. Sandy Lenihan's avatar Sandy Lenihan says:

    Gods bless you! You keep plugging along with such a fantastic attitude. I love reading your blogs.

    Keep up the good work. Best always to you and Travis. xxxooo

    Sandy Lenihan

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  2. Linda Mona's avatar Linda Mona says:

    I don’t comment much but always read your posts and am impressed both by your attitude and continued spirit and renewed health. You were at the first Camden’s Concert and won the prize for knowing the number of doses of medicine that little tyke took everyday. He is now six and hasn’t spent a day in the hospital or missed a day at kindergarten due to CF. With your new surgery coming up perhaps you will be ready to tackle attending the concert again on July 30 and we can give you a big shout out.
    Linda Mona

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    • NikkisNewLungs's avatar nikkinewlungs says:

      Thank you so much Linda! I can’t believe how time flies, Camden is six. I’m so happy to hear how healthy he is! Hopefully we will be able to attend the concert, would love to be there.

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  3. Annie's avatar Annie says:

    Love seeing you out and about, Nik! We’ll be thinking about you on June 5th. xoxo

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  4. Rich Rosenberg's avatar Rich Rosenberg says:

    nickster… good luck with the stent surgery. we would like to get together with you two….. maybe for an amphi ride…. I will even let you drive….

    thinking of you

    richie and mickey

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    • NikkisNewLungs's avatar nikkinewlungs says:

      We would love to see you as well. An amphi ride would be AWESOME! I can’t wait to drive that puppy πŸ™‚

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  5. Peggy Lubeck's avatar Peggy Lubeck says:

    Glad to hear about your fun. I am at Ashley &Scotts meeting CARTER he is so adorable? I wish you luck with the surgery. It will be one year for me on my surgery. Your positive attitude is what gets you through it.

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    • NikkisNewLungs's avatar nikkinewlungs says:

      Congratz grandparents! So happy for your family. We can’t wait to meet Carter, he is adorable. Hope you are doing well.

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