1000 Days

number1000qk7I have been waiting for the perfect pair of lungs for….1000 days. I feel blessed. Many transplant patients don’t wait or can’t wait as long as I have. When I went active on the list, I never dreamed I would wait this long. Back in June of 2010, my lung functions were about as low as they had ever been. I was convinced there was no way I would see 1000 more sunrises without the gift of a new set of lungs. Unfortunately, my lungs are much  worse now. But, with increased treatments and a little luck, I’m still here….waiting for “the call”.

“They say patience is a virtue, but time doesn’t wait.” ~Unknown

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30 Responses to 1000 Days

  1. Thinking of you today and hoping “the call” comes soon.

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  2. Sandy Bozich's avatar Sandy Bozich says:

    Praying every day that you get the call for your new lungs! Our love to you!

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  3. Barb and Tom Votel's avatar Barb and Tom Votel says:

    Hi Nikki!
    Tom and I think of you often and are sending you Lots of positive energy. You are a model of tenacity for all our children with CF! Thank you!
    Tom and Barb Votel

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    • NikkisNewLungs's avatar nikkinewlungs says:

      Thank you so much for the kind compliment. You know what the power of positive energy produces! Hope your family is well.

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  4. Wally Preissing's avatar Wally Preissing says:

    Nicki, we are praying and hoping for you and Trevor daily. Hang in there, (easy to say, I know).
    Wally Preissing and Theresa Angelo

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  5. Bill Ludtke's avatar Bill Ludtke says:

    Keep the faith Nicki! You are a inspiration for all of us. You are in my prayers everyday. God has a miracle planned for you and will soon deliver.

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  6. Jack Barrett's avatar Jack Barrett says:

    Hang in there, Nikki, as I know that you are. On the prayer bones, with thoughts of you and Travis. Jack

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  7. Nikki, you continue to inspire me with your amazing attitude! Hang in there…I hope the gift of a perfect match comes soon.

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  8. Mom's avatar Mom says:

    There must be a reason that you have waited so long. Just look at all the good you have done during that time. You have been an inspiration to so many people. I have no doubt that those perfect lungs will come soon.

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  9. Jamie's avatar Jamie says:

    Nikki, we are all waiting for your call but so glad you have been literally able to suck 1000 more days out of those old, sick lungs. Look at that as a blessing. 1000 more days added onto the countless more days that you will get with your new, healthy pair of lungs. You have done so much in those 1000 days. Keep fighting, keep up whatever you are doing. I know it seems relentless and you are getting tired of the endless routine that you do everyday but you are doing a great job! Hugs!

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  10. Jenny O'Masta's avatar Jenny O'Masta says:

    Your day is coming soon! You looked great on tv the other day!

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  11. Bill Carlson's avatar Bill Carlson says:

    The day when I can snip the O2 line is comming soon my friend! Never dreamed I would be friends with a national TV celeb!!

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  12. Greg Mansourian's avatar Greg Mansourian says:

    It sure doesn’t seem like nearly THREE YEARS ago, that this adventure began on the deck at Cuzzy’s! The timing is in God’s hands. Please keep the faith that His plan is SO important! Continued Blessings to you and Travis! Much love, Greg (Habibi), Heather, Audrey, Vincent AND Trikki & her friends! GM.

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    • NikkisNewLungs's avatar nikkinewlungs says:

      Thank you so much Habibi and family! You are right, it’s hard to believe almost three years has past since that amazing night at Cuzzy’s. Love to all of you in AZ!

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  13. Janet's avatar Janet says:

    Nikki,

    You looked amazing on TV!! HA!! Only you!! Love it!! Prayers have been lifted for you and I will have my prayer group at church continue to pray for you. God has a plan for you. That call IS going to come. Until then, live, love and stay healthy!!!

    Janet

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  14. patti dreher's avatar patti dreher says:

    Nikki I know that call will be soon. No person deserves it more than you Patti

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