I’m starting this blog to simply share my story. To educate about living with cystic fibrosis while waiting for a double lung transplant. I’m hoping that it will encourage and comfort others while waiting on a transplant list. Life still must go on as normal as possible while waiting for a call that an organ has come available.
I will be sharing the trials and triumphs of trying to stay healthy before transplant. I will also post pictures and videos of my life while anticipating my new lungs. I’m an honest and open person and talk from the heart.
As you read this blog please understand a few things. As I speak about my daily life I am not looking for sympathy, I’m not looking for pity, & I don’t want anyone to feel bad. I am only sharing what I go through on a daily basis. Everyone has challenges some of us just have a few more. I hope you enjoy experiencing my journey while waiting for “the call.”
~Nikki
Nikki's New Lungs 
Thank you so much for sharing your journey! As the child of a transplant recipient, I know it’s super tough waiting (for everyone involved).
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Thank you for the comment. Your are correct there are many people involved!
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Nikki, you rock! Thanks for telling us your story.
Jeff
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Thanks Jeff!
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Hi Nikki! Thanks for sharing your story! You are so inspiration and made such an impact on me when we met at the KARE-11 phone booth in January. I think of you often and hope to help you get your new lungs soon!
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Thanks Megan! Your so sweet. Had a great time with you at Kare-11.
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Hi Nicki, I too am on the active list. I need a double lung transplant, have been on the list since Nov.The funny thing about it is that I just retired Sept 2 2011 thinking to REALLY REALLY enjoy retirement but I contracted Idiomatic Pulmonary fibrosis in Oct further stayss revealed COPD and Emphezema. My case is not to a critical state but It has got me down so its nice to see a blog out there that I can follow. Thanks so much making it public awareness like you did
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I am hoping you receive “the call” soon also! Hang in there
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