- Listed for transplantJune 7, 2010Each day brings me one breath closer to a set of healthy new lungs!
-
- Have a question? Email me at: nikkisnewlungs@gmail.com
Cystic Fibrosis
Media Stories
Register to be a donor
-
Recent Posts
Archives
- December 2025
- December 2024
- December 2023
- July 2023
- May 2023
- April 2023
- March 2023
- February 2023
- December 2022
- August 2022
- July 2022
- June 2022
- May 2022
- April 2022
- March 2022
- February 2022
- January 2022
- December 2021
- October 2021
- September 2021
- August 2021
- July 2021
- June 2021
- May 2021
- April 2021
- March 2021
- February 2021
- December 2020
- November 2020
- October 2020
- August 2020
- July 2020
- June 2020
- May 2020
- April 2020
- March 2020
- February 2020
- January 2020
- December 2019
- November 2019
- October 2019
- September 2019
- August 2019
- July 2019
- June 2019
- May 2019
- April 2019
- March 2019
- February 2019
- January 2019
- December 2018
- November 2018
- October 2018
- September 2018
- August 2018
- July 2018
- June 2018
- May 2018
- April 2018
- March 2018
- February 2018
- January 2018
- December 2017
- November 2017
- October 2017
- September 2017
- August 2017
- July 2017
- June 2017
- May 2017
- April 2017
- March 2017
- February 2017
- January 2017
- December 2016
- November 2016
- October 2016
- September 2016
- August 2016
- July 2016
- June 2016
- May 2016
- April 2016
- March 2016
- February 2016
- January 2016
- December 2015
- November 2015
- October 2015
- September 2015
- August 2015
- July 2015
- June 2015
- May 2015
- April 2015
- March 2015
- February 2015
- January 2015
- December 2014
- November 2014
- October 2014
- September 2014
- August 2014
- July 2014
- June 2014
- May 2014
- April 2014
- March 2014
- February 2014
- January 2014
- December 2013
- November 2013
- October 2013
- September 2013
- August 2013
- July 2013
- June 2013
- May 2013
- April 2013
- March 2013
- February 2013
- January 2013
- December 2012
- November 2012
- October 2012
- September 2012
- August 2012
- July 2012
- June 2012
- May 2012
- April 2012
- March 2012
Independence Days
Honey and I are in school! We started obedience class three weeks ago. Because she was spayed, we had to miss the first week of class. We were a little behind but she is doing a great job catching up. I think she really likes practicing, every time I grab the leash and collar, she comes running with excitement!
We are told to watch the advanced class during our half hour break. Look at Honey and her friend Stella paying close attention with dreams of being of well behaved doggies.
For the last four summers, either Travis or I has been on the P.U.P. (physically unable to perform) list. Three years ago, he had shoulder surgery and was in a sling. Two years ago, I fell off my bike and was in a knee mobilizer. Last year I had a rib removed and vein surgery and wore a sling for two months. Now, Travis, with his slit thumb is bandaged almost to the elbow. Next year, we are going to do our best so we can enjoy the summer without any interruptions!
Along with being tied up for the last few summers, we have not made it up north to the Iron Range for the 4th of July. Travis is from Gilbert, and the 4th of July celebration is something hard to explain but something you just need to see. Thousands of people come from adjoining cities and out of town to partake in the parades, street dances, fireworks, and follow the Eveleth Clown Band from bar to bar. Everyone sings along to polka songs like “Roll Out the Barrel”, “When the Saints Go Marching In”, “Just Because”, and a few others.
It was great to feel well enough to finally make the trip. We had gone up every year until I wasn’t feeling well enough before my transplant. I was thrilled to see another friend who appreciated being there just as much as me. I ran into my fellow double lung transplant recipient, Richard! I have talked about him before. He is our good friend’s dad.
Both of us were excited to celebrate Independence Day for more than one reason. Obviously the first is the birth of our country. We also celebrated the “independence” that we both now have regained. But mostly, we celebrated “independence” from our oxygen tanks and tubes from the gift of life with new lungs!
I saw an opportunity to reach out to a large group of people to discuss organ donation and transplantation, so I took advantage! I set a table out at the Gilbert parade and handed out bracelets and brochures opening up some great conversations about the gift of life. I had people come up and thank me for the awareness because they either had a loved one that received life saving organs or knew someone that had donated.

Our friend Ben (his dad is Richard), me, Travis, and Ben’s son Charlie with a thumbs up for organ donation
On the 4th, after we joined in the parade fun, we drove back home. From there, we went next door to our neighbors. They put on the most amazing fireworks show. The kids were zipping around like fireflies with the endless supply of sparklers. The repetitive chorus of “ooh” and “aah” followed each of the dozens of rocket reports.
This last weekend, Lauren, got back into town. She was in Arizona for the last month with her dad. We had so much fun with her as she spent the weekend at our house. We went for a boat ride, made s’mores by the campfire, and swam in the lake. Another first for me. I couldn’t swim last year due to to my surgeries. In fact, this was the first time I was able to swim in the lake in about 10 years!!
Another first, Honey learned to swim! I can’t say it didn’t come with quite a few bruises. She was terrified at first and kept trying to jump out of my arms. The scratches and bruises paid off though. It got to a point where she didn’t want to get out of the water. I’m glad we have a water dog!
Posted in Uncategorized
Tagged Breathe, CF, Cystic Fibrosis, Donate Life, LifeSource, Lung Transplant, Organ Transplant, Transplant
1 Comment
Wordless Wednesday
Posted in Uncategorized
Tagged Breathe, CF, Cystic Fibrosis, Donate Life, LifeSource, Organ Transplant
Leave a comment
Knife Fight
Last year on father’s day we participated in Chad and Jenni Greenway’s Gridiron Gallop 5K run/walk supporting youth athletics. This year we walked again. If you recall, last year, I had just had my rib removed the week prior and I was about to have vein surgery the next day.
This year, it was great to be feeling healthy and strong! Travis stopped to use the restroom and told me he would catch up and to keep walking. It may have been a little cruel but, I started to jog a little 🙂 He still caught up to me but he definitely had to put in more effort. Maybe that’s how we shaved off six minutes from our time last year! After the morning exercise we relaxed at home for a little while. Later on we celebrated father’s day at my parents house where my brother grilled dinner.
Happy Birthday to my good friend Annie who turned forty on Wednesday! We met at Lake Nokomis for lunch and a cupcake. I’m so happy I was able to meet up with her! Happy 4.0 Annie!
Late last Monday, Travis was outside fixing a couple of our wood bar stools. He decided to use a big old buck knife to remove the glue and score the wood preparing to glue it again. Let’s just say he had a little fight with the knife and the knife won, Travis lacerated his thumb!
We attempted to stop the bleeding but after about ten minutes, I could see it was pretty deep and definitely was going to need sutures. We headed to urgent care where the doctor thought Travis possibly cut a tendon so he stitched him up and told him to see the hand surgeon in the next couple of days.
The discharge nurse told us to call the next day to schedule an appointment with the surgeon that was on call that night. Both Travis and I told the nurse that was not the name the doctor had given us. She insisted it was and told us she was listening to the conversation. Sure enough, when I called the following day to the name the nurse gave us, that doctor had been out of the country for two weeks and wasn’t going to be back for another couple of weeks.
After about six hours of frustration on the phone and getting nowhere with the urgent care center and their referral, we finally had a friend call in a favor to a hand surgeon.
Thanks to our friend, we met with the doctor on Thursday and Travis had surgery on Friday. When the surgeon came out to speak to me, he said it was worse than he had expected. Travis cut completely through both of his tendons and also cut half way through his joint. Yes, the knife won.
It was different being on this end of the medical spectrum. To see him laying there made me think about how amazing he has been during all the procedures and surgeries I have had. It is never easy seeing your loved one so vulnerable. Travis is a resilient man though! He went from this on Friday, at 11:30 in the morning…
To this at 7:30 Friday night!!
I have to stay healthy around here, two out of the three household members are all bandaged up! Honey has been wearing “the cone of shame” after being spayed and now Travis has at least a two month recovery. My poor babies!
Friday night, we attended our friends, Shane and Danielle’s, wedding. Travis was a trooper, I think the pain killers might have assisted his willingness to stay out for the evening.
Saturday, Travis was once again a trooper. I had a bunch of family in town from Canada to attend my second cousins wedding. It was a lovely wedding on a boat on Lake Minnetonka.
Afterwards, our extended family came back to our house so we could spend more time together. There were some family members that I haven’t seen in over nineteen years! It was a bit of a family reunion.
Posted in Uncategorized
5 Comments
Kat
Last Saturday, our friend and musician Kat Edmonson was in town. She was participating in the public radio program, Wits. Travis, Dana and myself attended this hilarious taping. The other guest on the program was Cary Elwes. You may remember him from playing the main character, Westley, in The Princess Bride. He was also in the movies Twister, Robin Hood: Men in Tights, and Saw. Both of them have the best sense of humor and did a fantastic job ad libbing with the skits. Kat, as always, sounded amazing as she sang a few of her songs. You can listen to the show by clicking on the link: Wits.
Afterwards, we were fortunate Kat had some free time. We drove her back to her hotel and spent some time enjoying her company. She is such a sweetheart. If you are interested in seeing and hearing her live, she will be performing at The Dakota Jazz Club in downtown Minneapolis this fall on October 26th.
I want to give a big congratulations to my buddy Bill. He just celebrated six years since receiving a heart from his donor, Tommy! Six years of feeling incredible. Bill suffered from congestive heart failure. Before Bill’s transplant, he had to have surgery due to his failing heart. When the surgeon went to repair his heart, a piece of it came right off in the surgeons hand.
Now he volunteers at University of Minnesota Hospital Emergency Department and spreads the word about the importance of organ, tissue, and eye donation all over the state of Minnesota. Bill and I speak frequently together about donation and transplantation. I am grateful to have Bill as a friend. Way to go Bill!
Health update: I met with my ENT on Monday. I know we had discussed not even talking about sinus surgery until November but it looks like we will be scheduling surgery at the end of summer. I have some polyps in my sinuses which indicates the inflammation that is deep in the sinus is so bad it is pushing out to the surface. We need to address this so I don’t have any major issues. We tried to hold off as long as possible but it looks like it’s time to take care of this.
Tuesday, I met with the nephrologist. It turns out, I have three things going against me. I have diabetes, I have had a transplant so I take immuno suppressive medication, and because of my surgery I am also taking blood pressure medication. All of those components can cause kidney damage. One of the levels they checked should be around thirty, mine is over three hundred.
Tomorrow, I am going to have a test done that will give a very accurate reading on exactly how well my kidney’s are working. It takes around five or six hours. I will have a dye injected and then every hour they will take blood. The blood work will measure how well my kidney’s flush the dye out of my system. The good news is, my test is in Dana’s department. She won’t be my nurse during the procedure but I will have the opportunity to chat with her a little.
Posted in Uncategorized
2 Comments

















