- Listed for transplantJune 7, 2010Each day brings me one breath closer to a set of healthy new lungs!
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- Have a question? Email me at: nikkisnewlungs@gmail.com
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Wordless Wednesday
Posted in Uncategorized
Tagged Breathe, CF, CFF, Cystic Fibrosis, Donate Life, Gift of Life, LifeSource, Lung Transplant, Lungs, Organ Transplant, Transplant
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2 YEARS!
Today is my two year Lungiversary!
I would not have survived without my life saving double lung transplant two years ago. I am doing my best to keep my new lungs in pristine condition and continue to thrive. Thank you everyone for the extended support you send my way. It means so much to hear the words of encouragement from my extended family and friends.
Last year on my first Lungiversary, I wrote my donor family a letter of gratitude and appreciation for their loved one’s gift. I sent another letter this year. Because of the donation I have received, I am able to share with them all of the wonderful things I have been able to accomplish since my surgery.
Trust me, it is not easy to compose a letter of this magnitude. Here I am enjoying a new life with new lungs yet they are missing out making memories with their loved one. It is very difficult to explain the good things in my life knowing their chance has been lost.
My wish is that someday I will have the opportunity to thank my donor’s family in person. I can only share my good health and extreme zest for life through words on paper. For now, I hope it gives them some solace knowing their loved one’s legacy is living on.
I am forever grateful to my donor and their family. I put my hand on my chest everyday, take a deep breath, and thank them- because, I can. Today, in honor of my donor and family, could you please take the time today to do this as well- because, you can.
Be thankful for those you love or have loved. Be thankful for all you have. Be thankful for the greatest gift of all- the gift of life.
Posted in Uncategorized
Tagged Breathe, CF, CFF, Donate Life, Gift of Life, LifeSource, Lung Transplant, Lungs, Organ Transplant, Transplant
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Dream Vacation In The Dells
Two weekends ago Travis, Dana, Lauren and I took a trip to Wisconsin Dells. Before my surgery, when I had to wear oxygen, water activities and roller coasters were not an option for me. You can’t really hold your breath with a tube sticking out of your nose. And holding on tight to an oxygen tank when you are upside down doesn’t exactly seem like it would end well.
We started off at Mt. Olympus on Saturday with one of the wooden roller coasters. It was fast but we heard there was a faster one. The weather was hot and humid which was perfect for a day at a water park, but it made the wave pool look irresistible. It generates over nine foot waves and comes crashing down taking you with it. The hilarious thing is, after everyone bumps and slams into each other, all at once the crowd heads into the eye of the storm and waits for about two minutes for the next wave.
With the hot weather, I think the entire state of Wisconsin thought it was a good idea to be in the Dells with us. According to the signs, there was a one hundred and twenty minute wait to go on some of the water slides. After spending some time floating down the lazy river, we were nearing the end of the day but had enough time to hit one more ride.
We weren’t going to leave without a spin on the coaster with the highest thrill factor. The notice for the wait time to ride Hades 360 predicted a little over an hour wait. It’s the world’s first upside down, underground, wooden roller coaster. After over two hours shuffling in line we were finally set to ride this beast. It was so worth the wait!! It was the most exciting roller coaster I have ever ridden.
Saturday night after grabbing some dinner we tried our putt putt skills at Pirate’s Cove mini golf. The winner wins a free ice cream after you finish. Travis eked out a one putt victory. He may have received his free cone but he was sweet enough to buy me and Lauren ice cream too.
Sunday, we hit Kalahari indoor park where I took the checkered flag on the go kart track. I had the fastest car and lapped all but one car. Really, it was not fair competition but I enjoyed smoking the three of them.
Afterwards we decided to take a Wisconsin Ducks Tour. The Ducks are amphibious trucks that were used during World War II. They take you on an hour long tour through scenic trails and go from land to water a few times along the Wisconsin River.
After a relaxing history lesson, it was time to hit another water park at Chula Vista. We definitely all have different choices when it comes to water slides. Dana likes the nice, calm, and relaxing rides. Travis and Lauren are a little adventurous. I prefer straight up crazy, the faster the better!

After climbing countless stairs we worked up quite the appetite. After grabbing some dinner, we finished the long day by visiting Ripley’s Believe It Or Not Museum.
The next morning, Travis had to head to Missouri for work but the girls hit one more stop before driving home. We gorged ourselves at Paul Bunyan’s Cook Shanty. An all you can eat breakfast stop. Yes, we all had a second portion but I was the only one to take a third 🙂
After we arrived home Monday, Honey and I had to prepare for her obedience class. We had been gone for a few days and it was test night. I was a little nervous because I didn’t have the chance to work with her while we were gone, but she did incredible! She passed Obedience 1 with flying colors. Honey was even used as an example that night. This week we start the second round of classes.
This last Thursday was Travis’ birthday. Two weeks ago, his mom was in town and we were able to get to celebrate with her.
On his actual birthday, the two of us went out to dinner again. After we finished eating, Dana met up with us to celebrate with her brother. They put one candle on the cake because forty-one wouldn’t fit 🙂
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Tagged Breathe, CF, CFF, Cystic Fibrosis, Donate Life, LifeSource, Lung Transplant, Lungs, Organ Transplant
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Happy Birthday Sweetie!
SWEET, that’s what my world has become with you! On this special day, I send all my love wishing you happiness not only for today but always.
I’m such a lucky girl to have this birthday boy in my life! 41 and still having fun!
Posted in Uncategorized
Tagged CF, Cystic Fibrosis, LifeSource, Lung Transplant, Lungs, Organ Transplant, Transplant
2 Comments
Wordless Wednesday
Posted in Uncategorized
Tagged Breathe, CF, CFF, Cystic Fibrosis, Donate Life, LifeSource, Lung Transplant, Lungs, Organ Transplant, Transplant
Leave a comment
Wordless Wednesday
Posted in Uncategorized
Tagged Breathe, CF, CFF, Cystic Fibrosis, Donate Life, LifeSource, Lung Transplant, Lungs, Organ Transplant, Transplant
2 Comments
Wordless Wednesday
Posted in Uncategorized
Tagged CFF, Cystic Fibrosis, Donate Life, LifeSource, Lung Transplant, Lungs, Organ Transplant
2 Comments
Pedal To The Metal
Three weekends ago, friends of ours, Jim and Lori, asked us to join them and family members up at their cabin on the Whitefish chain in Minnesota. Neither Travis nor I have spent time in that area. It was beautiful. The weather couldn’t have been any more perfect. We tooled around the lake during the day and stopped for lunch at Moonlight Bay, jumped in the lake, and watched fireworks from the boat during the Hay Lake Fireworks show.
We came home on that Sunday to no power from a storm that had come through the cities on the Friday night. Unfortunately, we had a bunch of food we had to discard. Fortunately though, I don’t have a slew of medical equipment like I used to. I would have had to figure out where to find power!
That Sunday night, I reminisced as we went to a concert. Back in the day, twenty years ago, I used to meet some friends every Sunday night to hear a particular band. “Greazy Meal” is a soul funk band that used to play every Sunday at the Cabooze. They did a reunion concert and I wasn’t going to miss it!
Travis and I met up with our good friend, Annie. Ironically, Annie and I didn’t know each other back then, but we figured out a few years ago that we both spent every Sunday at the Cabooze. We probably were rubbing elbows singing our hearts out together and didn’t even know it!
Another friend, Andy, who used to go every week also joined us. It took a little convincing to get him out since he had just come home from the cabin with his family. But he was reluctant to stay away. The band sounded exactly the same and just like twenty years ago, we sang our hearts out!
A couple of weeks ago, Travis was nice enough to captain a few of us girls out on the boat. The weather has been so wonderful, it was great to go grab dinner and enjoy the water with amazing gals.
While Travis is a little out of commission with his bum hand, I was mowing the lawn. Yes ME, mowing the lawn! Don’t worry, it’s small, it only takes eleven minutes. Just like shoveling in the winter, I enjoy it! Before my new lungs, I could never do these things.
I have never been stung by a bee, hornet, or yellow jacket ever before. Without knowing, I mowed over a yellow jacket nest. I now know, with loud noise or vibrations, the little buggers will protect their home by stinging, can’t blame them. It sure hurts but the good thing I found out, I am not allergic 🙂
Fifteen years ago, a group of us friends started a pub crawl in downtown Minneapolis. It almost always took place on the last weekend of the running of the bulls in Spain. The pub crawl was called “Running of the BS’ers”.
Everyone would buy a custom designed white shirt, red sash, and red bandana. There would be 5 – 7 guys dressed like bulls. They would wear all black with bull horns on their head attached to a helmet.
By the third year, we had over five hundred BS’ers running down the streets of Minneapolis. The cops would block off the street so we could run from one place to another. When we would show up and invade the next bar, people were amazed. That many people wearing the same thing is fun to see.
We not only started this for a good time, but all the proceeds from the shirt distribution have gone to charity. During the last fifteen years, over forty thousand dollars has been donated.
Now to finish catching you up. This last Friday, Travis and I drove up to Perham, Minnesota for a golf tournament. Travis was hoping to be golfing in the 31st annual Tuffy Nelson Golf Classic, but due to his injured hand, he’ll have to wait until next year. We drove up so I could say a few grateful words as the Nelson’s from KLN Family Brands made a very generous donation to the Cystic Fibrosis Foundation. We’re glad to report there were a record number of golfers who helped to make it all possible.
After lunch on the golf course we drove back to the cities and attended a farewell party for our good friend, Jamie, who is moving to Arizona. We wish her and her kids the best of luck as she embarks on her new career with the Arizona Coyotes.
After a few hugs goodbye to Jamie, Travis and I then left to spend the evening with more windshield time together. We drove on to Des Moines, Iowa and arrived at 2:30a.m. That pushed our grand total to a little over 1o hours in the car that day.
Travis had to be at the Iowa Speedway in Newton, Iowa the next morning. One of the company’s he works with sponsors the Menards NASCAR racing car. Fortunately for me, Travis had to work in the hospitality tent before the race began which meant, once again, I got to tag along 🙂
We both attended our first NASCAR race at the fastest short track in America. We loved it! It is a very exciting place to watch a race. Since it is a short track, you are able to see all the cars at all times.
Before the race, Brandon Jones, who by the way is only eighteen years old, was the driver for the Menards car at this particular race. He came up to speak to everyone in the tent and take photos. He is a very well spoken and nice young man. We hope he has a long future ahead of him.
We were very fortunate at the race. We had all access, “hot” passes. We went down before the race and checked out the garages, pit crew, race trailers, and cars.
We watched most of the race from the tent but went down to watch the end in the pit. It is so cool to be so close to cars cruising by at such speed. And to be right there next to the car when the pit crews were changing the tires so fast!
Lastly, a health update. This month, I will celebrate my two year lungiversary. Last Monday, I had all my annual studies for my transplant. I’m sorry I didn’t post anything earlier. We have been so busy around here as you have just read. I am so excited and thrilled to notify you, I had my best lung functions yet!!!
I have mentioned before I am like a turtle, slow and steady wins the race. I love how my lungs continue to slowly and steadily expand. I look forward to continuing down this path with my new pretty pink lungs.
Posted in Uncategorized
Tagged Breathe, CF, CFF, Cystic Fibrosis, Donate Life, LifeSource, Lung Transplant, Lungs, Organ Transplant, Transplant
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