Category Archives: Uncategorized

One of Travis’ co-workers was very sweet and bought me a little treat. If you have ever had a Droolin’ Moose malted milk boulder you know what I mean, they are delicious! I couldn’t stop at just eating one, I … Continue reading →

Want to see one of the reasons I am waiting for lungs? In the picture below is my PFT graph (pulmonary function test). The black dotted line is the predicted lung function for my age, height, and weight. My actual … Continue reading →

After my regular check up with my doctor last Thursday, we decided to head up north to Lake Vermilion for the fishing opener and spend Mother’s Day with Trav’s mom. The weather was great, the only problem was the fish … Continue reading →

Last week I had a routine check up with my primary physician, Dr. Jordon Dunitz. After looking at my weight, PFT’s (pulmonary function tests) and discussing my overall health, he gave me the “O.K.” to come back in two months, … Continue reading →

There is a new method for lung transplants that is being tested in the United States. It is called “Ex Vivo” an outside the body technique capable of continuously perfusing or pumping a bloodless solution containing oxygen, proteins and nutrients … Continue reading →

Today I am honored to be featured in the cystic fibrosis monthly newsletter:  “Now more then ever we need to stay focused on our mission for CF.”  I am a 36 year old living with cystic fibrosis (CF). I was … Continue reading →

Great news arrived today: Starting today, on Facebook, you can add that you’re an organ donor to your timeline, and share your story about when, where or why you decided to become a donor. Here are the instructions: From your … Continue reading →

I am looking forward to watching this tomorrow night! Tune in to ABC’s Nightline tomorrow night at 10:30 pm in Minneapolis on channel 5, to catch a special on the importance of organ donation that features a cast of Mayo … Continue reading →

I have mentioned how sinus play an intricate part with cystic fibrosis. The sinus are very important to keep clean and clear. What seems to be in the sinus eventually ends up draining to the lungs which can cause a … Continue reading →

As I try and get my blood sugars in a little better control I have noticed I have lost a couple of pounds. I can’t afford to lose any weight while I am waiting for transplant. I am a petite … Continue reading →