Author Archives: NikkisNewLungs

669 Days!

Posted on April 5, 2012 by NikkisNewLungs

I have been active on the transplant list for 669 days! Hard to imagine it was going to take this long. Although I’m happy I am maintaining my health, the wait seems to be endless.  There are not enough registered … Continue reading →

Posted in Uncategorized | 7 Comments

Vest Machine’s

Posted on April 5, 2012 by NikkisNewLungs

I have seen the progress in technology throughout the years with my vest machine. When I was sixteen and first started using the machine it weighed 110 pounds and looked like this: It came up to my waist and was … Continue reading →

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Spring Allergies

Posted on April 3, 2012 by NikkisNewLungs

As much as everyone is enjoying the unseasonably early spring like weather in Minnesota those that suffer from spring allergies are struggling. I love spring when everything is blooming and trees are turning green but for me it causes difficulty. … Continue reading →

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National Donate Life Month

Posted on April 2, 2012 by NikkisNewLungs

April is National Donate Life Month! I am always asked “what can I do to help?”. You can talk with your family, friends, or co-workers about the importance of organ donation. Including myself there are over 1800 people in Minnesota, … Continue reading →

Posted in Uncategorized | 2 Comments

Feed My Starving Children

Posted on April 1, 2012 by NikkisNewLungs

I had a great weekend. Friday we had a wedding reception for friends that were married in Mexico a few weeks ago. A Minnesota celebration with friends and family that couldn’t attend the wedding. I stayed out longer then I … Continue reading →

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Blood Clot

Posted on March 31, 2012 by NikkisNewLungs

I was looking at old pictures tonight. I came across photos from one of my blood clots. In October 2009 I had a port-a-cath (or port for short) in my arm. A port is an implantable device under the skin … Continue reading →

Posted in History | 2 Comments

The Power of Two

Posted on March 29, 2012 by NikkisNewLungs

A few weeks ago I traveled to Fargo. I was able to attend a viewing at the Fargo film Festival about a documentary called The Power of Two The story is about twin sisters that both have cystic fibrosis and … Continue reading →

Posted in travel | 2 Comments

Cough Up Blood

Posted on March 28, 2012 by NikkisNewLungs

I will never forget the first time I coughed up blood. I was about nineteen years old. That was back when I was figure skating. As a matter of fact it happened while I was skating. It was the year … Continue reading →

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65 Roses

Posted on March 27, 2012 by NikkisNewLungs

“65 Roses” is what some children with cystic fibrosis (CF) call their disease because the words are much easier for them to pronounce. Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her … Continue reading →

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Car Wash

Posted on March 26, 2012 by NikkisNewLungs

Just when I think my ribs are feeling a little better I do something silly. I have a bag of oxygen tanks I carry in the back of my car at all times. Today I decided I would have my … Continue reading →

Posted in Uncategorized | 2 Comments