Author Archives: NikkisNewLungs

There is a new method for lung transplants that is being tested in the United States. It is called “Ex Vivo” an outside the body technique capable of continuously perfusing or pumping a bloodless solution containing oxygen, proteins and nutrients … Continue reading →

Today I am honored to be featured in the cystic fibrosis monthly newsletter:  “Now more then ever we need to stay focused on our mission for CF.”  I am a 36 year old living with cystic fibrosis (CF). I was … Continue reading →

Great news arrived today: Starting today, on Facebook, you can add that you’re an organ donor to your timeline, and share your story about when, where or why you decided to become a donor. Here are the instructions: From your … Continue reading →

I am looking forward to watching this tomorrow night! Tune in to ABC’s Nightline tomorrow night at 10:30 pm in Minneapolis on channel 5, to catch a special on the importance of organ donation that features a cast of Mayo … Continue reading →

I have mentioned how sinus play an intricate part with cystic fibrosis. The sinus are very important to keep clean and clear. What seems to be in the sinus eventually ends up draining to the lungs which can cause a … Continue reading →

As I try and get my blood sugars in a little better control I have noticed I have lost a couple of pounds. I can’t afford to lose any weight while I am waiting for transplant. I am a petite … Continue reading →

Saturday we were able to attend the Donate Life Day celebration hosted by LifeSource. A beautiful brunch and award presentation at the Hilton by the Mall of America. Three volunteers were honored with the Volunteers of the Year Award. My … Continue reading →

Tomorrow, April 20, 2012 is National Donate Life Blue and Green Day! If you would like to support organ, eye, and tissue donation in the initiative to have 20 million new registered donors in 2012 by drawing attention to this … Continue reading →

I had an appointment today that was on the University of Minnesota children’s campus. Knowing I was going to be in the area of the Amplatz Children’s Hospital, I thought I would bring my dog Rosie to visit Grace who … Continue reading →