This last weekend was quiet and relaxing. I didn’t have much energy on Friday or Saturday. We did manage to ride our bikes to a friend’s house Sunday for about an hour. Don’t forget, my bike is motorized.
On Memorial Day we went to my parents to have dinner with my family. We weren’t planning on celebrating my mom’s birthday (which is today) but ended up doing so. It was funny, both my brother and I bought cakes for dessert but didn’t tell each other. Happy Birthday Mom, I love you!
Me and my Mom
Nikki's New Lungs 
What acute picture. Interesting reading all about your adventure.
Camden is doing well. He isn’t eligible for the new drug but he has a deleted gene and one mutated which acts like the mutated gene in the trials. Hopefully a drug will be developed in the near future. Save July 25 for Camden’s Concert. Tickets are available at the Hopkins Center for the Arts. The best news would be that you can’t attend because you are getting new lungs. We’d shout it from the stage. Keep well.
Linda Mona
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Thanks Linda! Happy to hear that Camden is doing well. I have a feeling there will be new drugs sooner then later, it’s amazing what is in the works. We marked the 25th in our calendar! Hope to be there but I like your thinking 🙂 Looking forward to seeing you.
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I love you too.
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