Monthly Archives: March 2012

Happy St. Patrick’s Day!

Just went for an hour bike ride! Don’t forget my bike is electric (no leg work needed). And it was AWESOME! I went on bridges I never knew existed before! We took a bike trail to one of the lakes, … Continue reading

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Blood Work

Yesterday I had a quick doctors appointment. I needed to get a shot. When you’re on the transplant list, vaccines need to be up-to-date. One of the required vaccines is hepatitis B. It is a six-month series of shots. After … Continue reading

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Home Cooked Meal

So I had to go to my parents house today. When I walked in, it smelled wonderful. My dad was cooking steak, homemade french fries, and fried onions. Since it was just about finished and I don’t get a home-cooked … Continue reading

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Reminder

Today was one of those days that reminds me why I am on the transplant list. My energy level is very low. I sometimes push myself to do tasks that seem to be so simple yet require a lot of … Continue reading

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KSTP channel 5

What a morning! Thank you Joy Lim Nakrin at channel 5 news for speaking with me. It was wonderful to talk about my blog and awareness for organ donation. It is so hard to say so much in such a … Continue reading

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Treadmill

So I had mentioned earlier today my ribs were bothering me. I’m on the treadmill and it’s a challenge. Exercise is SO important while waiting for a transplant.  I walk 2 miles almost everyday. The thing is exercise makes me … Continue reading

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Wiped Out

I’m exhausted! The trip to Fargo was unbelievable! I am so happy I was feeling well enough to make the trip. I have lost a bit of my energy lately and will not jeopardize my health if life begins to … Continue reading

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Traveling

It takes a little extra effort to travel not only with CF but while being on the transplant list but it is possible. You can’t travel or live too far if you are currently active on the list. You have … Continue reading

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Welcome!

I’m starting this blog to simply share my story. To educate about living with cystic fibrosis while waiting for a double lung transplant. I’m hoping that it will encourage and comfort others while waiting on a transplant list. Life still … Continue reading

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