Monthly Archives: March 2012

Blood Clot

I was looking at old pictures tonight. I came across photos from one of my blood clots. In October 2009 I had a port-a-cath (or port for short) in my arm. A port is an implantable device under the skin … Continue reading

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The Power of Two

A few weeks ago I traveled to Fargo. I was able to attend a viewing at the Fargo film Festival about a documentary called The Power of Two The story is about twin sisters that both have cystic fibrosis and … Continue reading

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Cough Up Blood

I will never forget the first time I coughed up blood. I was about nineteen years old. That was back when I was figure skating. As a matter of fact it happened while I was skating. It was the year … Continue reading

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65 Roses

“65 Roses” is what some children with cystic fibrosis (CF) call their disease because the words are much easier for them to pronounce. Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her … Continue reading

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Car Wash

Just when I think my ribs are feeling a little better I do something silly. I have a bag of oxygen tanks I carry in the back of my car at all times. Today I decided I would have my … Continue reading

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Blood Sugars

Another thing that has to be in check while waiting for transplant are my blood sugars. If my blood sugars are high I am more prone to get an infection. If I get an infection my blood sugars are going … Continue reading

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Kindergarten School

When I started kindergarten school the teacher had the class draw a picture with every member of your family. I drew my mother and I thanking the angels for bringing me to them, my brother and I playing, and this … Continue reading

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Bill

While I wait for transplant I’m trying to spread awareness and educate others about organ donation. Tonight was one of those nights. I got to team up with my buddy Bill. We spoke at a driver’s education class. Sharing our … Continue reading

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Transplant Evaluation

When I went through the process almost two years ago for transplant consideration it was quite an ordeal. One of the most stressful moments in my life that I have ever experienced. I remember waiting to hear if I was … Continue reading

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Vest Treatment

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